Research Focus

Risk Processes -- Risk Assessment, Risk Communication, Risk Management; (2) Patient Decision Making and Decision Support


Journal Articles

Sepucha, K., Matlock, D.D., Wills, C.E., Ropka, M., Stacey, D., Ng, C.J., Levin, C., Lally, J., Joseph-Williams, N., Borkhoff, C.M., & Thomson, R. (2014). "It’s valid and reliable” is not enough: Critical appraisal of reporting of measures evaluating patient decision aids. Medical Decision Making, 34(5), 560-66. doi:10.1177/0272989X14528381

Marcus, A.C., Diefenbach, M.A., Stanton, A.L., Miller-Halegoua, S.M., Fleisher, L., Raich, P.C., … Bright, M.A. on behalf of the CISRC Research Team. (2013). Cancer patient and survivor research from the Cancer Information Service Research Consortium: A preview of three large randomized trials and initial lessons learned. Journal of Health Communication, 18(5), 543-562. doi:10.1080/10810730.2012.743629

Keim-Malpass, J., Baernholdt, M., Erickson, J.M., Ropka, M.E., Schroen, A.T., & Steeves, R.H. (2013). Blogging through cancer: Young women’s persistent problems shared online. Cancer Nursing, 36(2), 163-172.

Sepucha, K.R., Borkhoff, C.M., Lally, J., Levin, C.A., Matlock, D.D., Ng, C., Ropka, M.E., Stacey, D., Joseph-Williams, N., Wills, C.E., & Thomson, R. (2013). Establishing the effectiveness of patient decision aids: Key constructs and measurement instruments. BMC Medical Informatics and Decision Making, 13(Suppl 2), S12. doi:10.1186/1472-6947-13-s2-s12

Cherry, C., Ropka, M.E., Lyle, J., Napolitano, L., & Daly, MB. (2013). Understanding the needs of women considering risk-reducing salpingo-oophorectomy. Cancer Nursing, 36(3), E33-8. doi:10.1097/ncc.0b013e3182642cb5

Calzone, K.A., Jenkins, J., Bakos, A.D., Cashion, A.K., Donaldson, N., Feero, W.G., Feetham, S., Grady, P. Hinshaw, A.S., Knebel, A.R., Robinson, N., Ropka, M.E, Seibert, D., Stevens, K.R., Tully, L.A., & Webb, J.A. (2013). Genomic nursing state of the science advisory panel. Journal of Nursing Scholarship, 45(1), 96-104 (Published online Jan. 31, 2013). PMID: 23368636.

Keim-Malpass, J., Baernholdt, M., Erickson, J. M., Ropka, M. E., Schroen, A.T., & Steeves, R. H. (2013). Blogging through cancer: Young women’s persistent problems shared online. Cancer Nursing, 36(2), 163-172. doi:10.1097/NCC.0b013e31824eb879

Jones, R. A., Steeves, R., Ropka, M. E., & Hollen, P. J. (2013). Capturing treatment decision making among patients with solid tumors and their support persons. Oncology Nursing Forum, 40(1), E24-31. PMCID: PMC3634347. doi:10.1188/13.onf.e24-e31

Wen, K.Y., Miller, S.M., Stanton, A., Fleisher, L., Morra, M.E., Jorge, A., Ropka, M.E., & Marcus, A. (2012). The development and preliminary testing of multimedia patient-provider survivorship communication module for breast cancer survivors. Patient Educ Couns, 88(2), 344-9. (Published online Jul 7, 2012). PMID: 22770812.

Lee, C., McRae, C., de Abreu, M.M., de la Torre, A.C., LeBlanc, A., Matlock, D., Ropka, M., & Miesfeldt, S. (2011). Interprofessional education about decision support for patients: What are the high-priority research issues? Journal of Interprofessional Care, 25(6), 428-30. PMID: 22011028.

Cohn, W. F., Ropka, M. E., Pelletier, S., Barrett, J., Kinzie, M., Harrison, M., Liuy, Z., Miesfeldt, S., Tucker, A., Worrall, B. B., Gibson, J., Mullins, I. M., Elward, K. S., Franko, J., Guterbock, T., & Knaus, W. A. (2010). Health Heritage: A web-based tool for the collection and assessment of family health history; initial user experience and analytic validity. Public Health Genomics, 13(7), 477-91. (Published on line: April 29, 2010) PMID: 204.

Ropka, ME., Keim, J, Philbrick, JT (2010). Patient decisions about breast cancer chemoprevention: A systematic review. Journal of Clinical Oncology, 28(18), 3090-5. doi:10.1200/JCO.2009.27.8077

Masny, A., Ropka, M. E., Peterson, C., Fetzer, D., & Daly, M. B. (2008). Mentoring nurses in familial cancer risk assessment and counseling: Lessons learned from a formative evaluation. Journal of Genetic Counseling, 17, 196-207. PMID: 18224431.

Ropka, M. E., Wenzel, J., Phillips, E. K., Siadaty, M., & Philbrick, J. T. (2006). Uptake rates for breast cancer genetic testing: A systematic review. Cancer Epidemiology, Biomarkers, and Prevention, 15(5), 840-855. PMID: 16702359.

Vadaparampil, S. T., Ropka, M. E., & Stefanek, M. (2005). Measurement of psychological factors associated with genetic testing for hereditary breast, ovarian and colon cancers. Familial Cancer, 4(2), 195-206. PMID: 15951974.


Conner, K. M., Daly, M. B., Cherry, C., Masny, A., Montgomery, S., Martin, V. R., & Ropka, M. E. (2006). OvarianCancer Risk-Reducing Surgery: A Decision-Making Resource. Philadelphia: Fox Chase Cancer Center.