WEBVTT

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ISHAN WILLIAMS:
I didn't actually

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know a lot about Alzheimer's
disease or dementia

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until I got into
graduate school.

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And I started to see how many
people it took to actually care

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for someone who had Alzheimer's
disease and the impact

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of that caregiving
on the individual who

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was providing that care.

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Dementia caregiving
in particular

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is even more challenging
than other conditions.

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Often in African-American
families,

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they're under-diagnosed.

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The disease progresses quickly.

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It takes training for
caregivers to really understand

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how to shift the way that
they interact with the person

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that they're caring for.

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And I think those challenges
really can be just hard.

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A lot of the caregiving
interventions

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that we try to
develop and implement

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in the community is
more around awareness,

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like what do you
expect when someone's

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in the early stages of dementia?

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Then how does that
change over time?

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Do I need to set up
a home care nurse?

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Do I need to think
about long-term care?

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What changes in their
behavior might be

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expected so that I'm prepared?

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So we train caregivers on
nutrition, sleep patterns,

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how to take care of
yourself as a caregiver.

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I think we should
talk more about it

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and figure out what we can do to
help relieve some of the stress

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and burden that caregivers
often felt in the midst of also

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very positive affirmations
of why they were

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doing what they were doing.

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